14 - 15 May 2020 - ONLINE - The Rare Disease Patient Journey in 2030 – European Conference on Rare Diseases and Orphan Drugs

The European Conference on Rare Diseases and Orphan Drugs (ECRD) served as an opportunity to evaluate the plausibility and consistency of proposed scenarios and fine-tune the scenarios description to different territorial contexts. Sessions throughout the ECRD presented the possible future scenarios in rare disease policy and opened a debate on the policy options needed to get there.