See below for the tools developed throughout the four stages of the Rare2030 Foresight Study:

 

View the knowledge base (a collection of summaries of knowledge on eight topics relevant to rare disease policy)

 

 

View trends & drivers of change that have been identified as instrumental to shaping the future of rare disease policy

 

 

View videos explaining the four policy scenario videos

 

 

The final Rare2030 policy recommendations will be published in February 2021. Please check back then!

Further deliverables

Rare 2030 project Data Management Plan

Leaflet, logo and presentation templates

Stakeholder engagement and dissemination plan

Rare 2030 website

Evaluation plan

Research Advisory Board

Milestone: Membership list and terms of reference for Panel of Experts

Milestone: Methodological paper governing the literature review for horizon scanning

Panel of Experts Workshop - Conference report 7 November 2019

Report on the rare disease knowledge base: policies, actors, initiatives

Report on trends and drivers of change for RD, resulting from stakeholder interviews and workshop (updated)

Webinars

Rare 2030 leaflet

Click button to download

Project updates

Rare 2030 project update May 2020

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Rare 2030 project update September 2020

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