Watch the recording

Live stream Rare2030 Panel of Experts Workshop

9:00 – 13:00 Brussels time, 7 November
Watch the recording of the Rare 2030 Panel of Experts Workshop – Validation of Trends and Drivers and Building of Scenario Space.
Contact [email protected] with any questions.

Part one

 
Introduction
  • Frédérique Ries, Member of European Parliament
  • Yann Le Cam, EURORDIS-Rare Diseases Europe
  • Rüdiger Krech, WHO Health Systems and Innovation (video)

Part two

 
Research Advisory Board Panel Discussion: Global insights 
  • Moderated by Andrea Ricci, ISINNOVA
  • Robert Madelin, FIPRA, former Director DG CONNECT and DG SANTE
  • Terkel Andersen, EURORDIS-Rare Diseases Europe Board of Directors
  • Milan Macek, Dept of Biology and Medical Genetics, Charles University Orphanet Czech Republic

Part three

 
Presentation of Methods of Trends
  • Victoria Hedley, University of Newcastle Institute of Genomic Medicine
  • Giovanna Giuffrè, ISINNOVA

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