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  • What is Rare 2030?
  • How It Works
  • Who is involved?
    • Project partners
    • Panel of Experts
    • Research Advisory Board
    • Young Citizens
    • Rare Barometer Voices
  • Key Events
    • Feb 2021 – Policy Conference
    • May-Nov 2020 – Regional Conferences
    • 28 Oct 2020 – Online Young Citizen Conference Fall Debate
    • 26 Oct 2020 – ERN Plenary Event
    • Sept – Oct 2020 – EU level Backcasting workshop
    • 7 – 8 July 2020 – Young Citizen Conference
    • 14 – 15 May 2020 – The Rare Disease Patient Journey in 2030
    • 7 Nov 2019, Brussels – Panel of Experts Workshop
    • 18 May 2019, Bucharest, Romania – Knowledge Base Workshop
  • Our Work
    • Recommendations
    • Rare2030 policy scenarios
    • Trends
    • Knowledge base
    • Further deliverables
  • Contact
    • Newsletter sign up
  • Have any questions?
  • [email protected]
  • 234-235-5678

  • What is Rare 2030?
  • How It Works
  • Who is involved?
    • Project partners
    • Panel of Experts
    • Research Advisory Board
    • Young Citizens
    • Rare Barometer Voices
  • Key Events
    • Feb 2021 – Policy Conference
    • May-Nov 2020 – Regional Conferences
    • 28 Oct 2020 – Online Young Citizen Conference Fall Debate
    • 26 Oct 2020 – ERN Plenary Event
    • Sept – Oct 2020 – EU level Backcasting workshop
    • 7 – 8 July 2020 – Young Citizen Conference
    • 14 – 15 May 2020 – The Rare Disease Patient Journey in 2030
    • 7 Nov 2019, Brussels – Panel of Experts Workshop
    • 18 May 2019, Bucharest, Romania – Knowledge Base Workshop
  • Our Work
    • Recommendations
    • Rare2030 policy scenarios
    • Trends
    • Knowledge base
    • Further deliverables
  • Contact
    • Newsletter sign up

See below for the tools developed throughout the four stages of the Rare2030 Foresight Study:

 

View the knowledge base (a collection of summaries of knowledge on eight topics relevant to rare disease policy)

 

 

View trends & drivers of change that have been identified as instrumental to shaping the future of rare disease policy

 

 

View videos explaining the four policy scenario videos

 

 

Read the final Rare 2030 policy recommendations!

The Rare2030 project is co-funded by the European Union Pilot Projects and Preparatory Actions Programme (2014- 2020). This website is part of the pilot project PP-1-2-2018-Rare 2030. The content represents the views of the author only and is his/her sole responsibility; it cannot be considered to reflect the views of the European Commission or any other body of the European Union.


For more information
contact: Anna Kole
[email protected]
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