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What is Rare 2030?
How It Works
Who is involved?
Project partners
Panel of Experts
Research Advisory Board
Young Citizens
Rare Barometer Voices
Key Events
Feb 2021 – Policy Conference
May-Nov 2020 – Regional Conferences
28 Oct 2020 – Online Young Citizen Conference Fall Debate
26 Oct 2020 – ERN Plenary Event
Sept – Oct 2020 – EU level Backcasting workshop
7 – 8 July 2020 – Young Citizen Conference
14 – 15 May 2020 – The Rare Disease Patient Journey in 2030
7 Nov 2019, Brussels – Panel of Experts Workshop
18 May 2019, Bucharest, Romania – Knowledge Base Workshop
Our Work
Recommendations
Rare2030 policy scenarios
Trends
Knowledge base
Further deliverables
Contact
Newsletter sign up
Have any questions?
[email protected]
234-235-5678
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Menu
What is Rare 2030?
How It Works
Who is involved?
Project partners
Panel of Experts
Research Advisory Board
Young Citizens
Rare Barometer Voices
Key Events
Feb 2021 – Policy Conference
May-Nov 2020 – Regional Conferences
28 Oct 2020 – Online Young Citizen Conference Fall Debate
26 Oct 2020 – ERN Plenary Event
Sept – Oct 2020 – EU level Backcasting workshop
7 – 8 July 2020 – Young Citizen Conference
14 – 15 May 2020 – The Rare Disease Patient Journey in 2030
7 Nov 2019, Brussels – Panel of Experts Workshop
18 May 2019, Bucharest, Romania – Knowledge Base Workshop
Our Work
Recommendations
Rare2030 policy scenarios
Trends
Knowledge base
Further deliverables
Contact
Newsletter sign up
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