Further deliverables

Rare 2030 project Data Management Plan

Leaflet, logo and presentation templates

Stakeholder engagement and dissemination plan

Rare 2030 website

Evaluation plan

Research Advisory Board

Milestone: Membership list and terms of reference for Panel of Experts

Milestone: Methodological paper governing the literature review for horizon scanning

Panel of Experts Workshop - Conference report 7 November 2019

Report on the rare disease knowledge base: policies, actors, initiatives

Report on trends and drivers of change for RD, resulting from stakeholder interviews and workshop (updated)

RARE 2030 Scenarios: a stakeholders view

Report on the Consensus Conference

Brief on policy pilot of EU health platform

R&D and market launch of orphan drugs

Rare 2030 validated scenarios

Report on Rare 2030 survey

Brief describing new policy opportunities

Report on EU workshop on ERNs

Executive summary final report

Final evaluation report

Report on final conference

Scenarios space and stories: a preliminary version

Webinars

Rare 2030 leaflet

Click button to download
Download

Project updates

Rare 2030 project update May 2020

Click button to download
Download

Rare 2030 project update September 2020

Click button to download
Download