Sept - Oct 2020 - EU level Backcasting workshop
EU Level Backcasting Workshops: ERN coordinators, HCPs, patient advocates (ePAGs) and key representatives of European consortia and institutions discuss the policies around the future of ERNs as a key component of the Rare 2030 project recommendations. A staggered series of online brainstorming workshops addressed the following topics:
Sept 21st: Governance and strategic positioning of ERNs
Sept 28th : Integrating ERNs to national systems and framework
Sept 29th: Role of ERNs in virtual care delivery and cross-boarder healthcare
Oct 12th: ERNs, research, and the data ecosystem of the future
Outputs of these workshops were presented in a final plenary conference where participants including key decision makers were provided opportunities to ask questions and provide feedback.
See the preliminary results