Feb 2021 - Policy Conference @Parliament
On the occasion of the Rare Disease Week 2021, a series of advocacy events, held online, this event will be the culmination of our two-year study and we will present our recommendations on February 23rd.
The Rare 2030 Final Event marks the end of this two-year foresight study and will be the occasion to present the Rare 2030 policy recommendations for a new policy framework in presence of high-level speakers, such as Member of Parliament Frédérique Ries, or European Commissioner for Health and Food Safety Stella Kyriakides to name just a few.
Following the presentation and a panel discussion on the project’s outcomes, theme-specific (Access to healthcare, data, diagnostics, …) breakout sessions will be the opportunity for the audience to learn more about the Rare 2030 recommendations in detail and to learn how to use these in their advocacy, research and development, healthcare and policy work.
Public registration coming soon!