The health of 30 million people living with a rare disease in Europe should not be left to luck or chance. Rare 2030 prepares a better future for people living with a rare disease in Europe with foresight.
What trends and drivers will change the future for people living with rare diseases in the next decade?
Which ones will we prioritise and what future scenarios are possible based on these policy decisions?
Rare 2030 is a foresight study that gathers the input of a large group of patients, practitioners and key opinion leaders to propose policy recommendations that will answer leading us for a better future for people living with a rare disease in Europe.
Since the adoption of the Council Recommendation on European Action in the field of Rare Diseases in 2009, the European Union has fostered tremendous progress to improve the lives of people living with rare diseases. Rare 2030 will guide a reflection on rare disease policy in Europe through the next ten years and beyond.