Further deliverables

Rare 2030 project Data Management Plan

Leaflet, logo and presentation templates

Stakeholder engagement and dissemination plan

Rare 2030 website

Evaluation plan

Research Advisory Board

Milestone: Membership list and terms of reference for Panel of Experts

Milestone: Methodological paper governing the literature review for horizon scanning

Panel of Experts Workshop - Conference report 7 November 2019

Report on the rare disease knowledge base: policies, actors, initiatives

Report on trends and drivers of change for RD, resulting from stakeholder interviews and workshop (updated)

RARE 2030 Scenarios: a stakeholders view


Rare 2030 leaflet

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Project updates

Rare 2030 project update May 2020

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Rare 2030 project update September 2020

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