7 Nov 2019, Brussels - Panel of Experts Workshop – Validation of Trends and Drivers and Building of Scenario Space

Hundreds of stakeholders comprising the Rare 2030 Panel of Experts will convene to validate the trends and drivers identified, ranked and prioritized throughout the year. These trends will serve a more interaction portion of the workshop where participants will begin to define possible future trends based on the trends and drivers that are prioritized. Download conference agenda here.

Watch the livestream
Read the conference report



Part one

  • Frédérique Ries, Member of European Parliament
  • Yann Le Cam, EURORDIS-Rare Diseases Europe
  • Rüdiger Krech, WHO Health Systems and Innovation (video)

Part two

Research Advisory Board Panel Discussion: Global insights 
  • Moderated by Andrea Ricci, ISINNOVA
  • Robert Madelin, FIPRA, former Director DG CONNECT and DG SANTE
  • Terkel Andersen, EURORDIS-Rare Diseases Europe Board of Directors
  • Milan Macek, Dept of Biology and Medical Genetics, Charles University Orphanet Czech Republic

Part three

Presentation of Methods of Trends
  • Victoria Hedley, University of Newcastle Institute of Genomic Medicine
  • Giovanna Giuffrè, ISINNOVA